In this video I’m speaking to Mila in Lithuanian and English—both are part of her world 🤍 Mila lives with a rare neurological condition called STXBP1. Many children with STXBP1 do not develop verbal speech, or their speech is very limited. Communication often looks different—through sounds, expressions, eye contact, movement, and connection rather than words. We are also learning to use an eye-gaze communication device. It’s a slow process and will take time, patience, and practice—but every sm
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