Batten Disease – Vision & Brain Loss #dnasequencing #rarediseases #pediatric #science #humanbiology
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Batten Disease – Vision & Brain Loss #dnasequencing #rarediseases #pediatric #science #humanbiology
415 views7 months ago
YouTubeComputational Genome Biology
Batten Disease and the Push for Earlier Diagnosis - Dr Jennifer Vermillion
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Batten Disease and the Push for Earlier Diagnosis - Dr Jennifer Vermillion
2 views4 months ago
YouTubeMD Newsline
Neuronal ceroid lipofuscinoses (Batten disease)
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Neuronal ceroid lipofuscinoses (Batten disease)
8K viewsAug 6, 2023
YouTubeOsmosis from Elsevier
How is the gene therapy working to stop or slow the progression of Battens disease? That’s a great question and we don’t know the answer yet. There are so many variable and every skill has seen both progression and regression since the infusion. But we have HOPE. #fyp #terminalillness #battendisease #cln7 #clinicaltrial #medicalmomsoftiktok #medicalmommalife #doingmybest #hope #griefjourney #raredisease #ihatebattensdisease
2:31
How is the gene therapy working to stop or slow the progression of Battens disease? That’s a great question and we don’t know the answer yet. There are so many variable and every skill has seen both progression and regression since the infusion. But we have HOPE. #fyp #terminalillness #battendisease #cln7 #clinicaltrial #medicalmomsoftiktok #medicalmommalife #doingmybest #hope #griefjourney #raredisease #ihatebattensdisease
171.9K viewsJan 11, 2023
TikTokwhatif.itsizzy
What If We Could Understand Batten Disease Progression?
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What If We Could Understand Batten Disease Progression?
2.1K viewsFeb 7, 2025
YouTubeDel Monte Institute for Neuroscience
Batten Disease: How a Batten Mother helps give back to the BDSRA Foundation
2:40
Batten Disease: How a Batten Mother helps give back to the BDSRA Foundation
1.5K views9 months ago
YouTubeBDSRA Foundation
Fontana girl with rare disease gets lifeline from doctors
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Fontana girl with rare disease gets lifeline from doctors
2.9K viewsJul 31, 2025
YouTubeNBCLA
0:19
Confronting the Challenges of Batten Disease
14.3K viewsSep 19, 2025
TikTok_ollies_army
1:02
After daughter's devastating Batten diagnosis, a family is fighting to find a cure #shorts
4.5K viewsAug 13, 2025
YouTubeWCCO - CBS Minnesota
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Boys Town Named Batten Disease Center of Excellence Affiliate
274 views8 months ago
YouTubeBoysTownHospital
0:08
The Day Luke Skywalker Saved a Real-Life Jedi 💫❤️
51.3K viewsJul 27, 2025
YouTubeFactopedia
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Vintage Films on Instagram: "Kennedy Hansen, a delightful and affectionate child, inexplicably starts to fall. Years pass before the diagnosis is made: Juvenile Batten Disease, a rare, devastating, and terminal condition. Batten Disease has no cure, and after living only 16 years, Kennedy leaves behind a remarkable legacy of love and friendship. However, her story doesn’t conclude with her death; that’s when the extraordinary begins. Based on a true story. #korean #fyp #kdrama #explore #follow"
15.9K views8 months ago
Instagramvintage_flims
2:33
“The story of a lovely teenager with late-onset Batten disease”
971.8K views8 months ago
YouTubeธันย์ชนก ธานี
1:56
Amelia's Battle with CNL2 Batten Disease Awareness
870.6K views11 months ago
TikTok_ollies_army
0:29
Paralysis #tiktoklivefest2024 #livefest2024 #ladygaga #disease
973.3K viewsNov 21, 2024
TikTokinfernumasylum
0:57
sickk and tireeedddd #bts #bangtan #disease #be #fyp | dis ease bts
319.8K views4 months ago
TikTokfeeefeefe
1:00
Emma's Care Routine: Maintaining Health & Safety
716.2K viewsMay 5, 2024
TikToklilymartin0131
0:33
Understanding Batten Disease: A Mother's Fight
330.7K viewsJan 17, 2025
TikToklove.to.emma
2:45
‘Consequences would be devastating for all the children if they were removed from it’ The only drug that treats children with a rare degenerative disease called Batten disease could be withdrawn within the next few months if negotiations over its price fail. We speak to a family desperate to ensure the treatment continues. #BattensDisease #NICE #NHS #GOSH #Health #Channel4News
297.3K viewsJan 30, 2025
TikTokc4news
2:24
Understanding IPV Machines in Respiratory Therapy for Battens Disease Patients
241.9K viewsDec 26, 2023
TikToklilymartin0131
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