New Episode of the ASF Podcast! Amanda Moore talks with former Congressman Erik Paulsen, Chairman of the Institute for Gene Therapies, about how policy and advocacy are shaping the future of gene therapy for rare diseases like Angelman syndrome. They discuss the need for modernized healthcare policies, better access to treatment, and how collaboration across patient groups and policymakers can help make life-changing therapies available to all. Listen on Apple Podcast, Spotify and YouTube Podcas

New ASF Podcast Episode: Epilepsy in Angelman Syndrome. Listen to this recording from the 2024 ASF Family Conference to gain valuable knowledge and strategies to manage epilepsy effectively. Dr. Mark Nespeca, Dr. Ron Thibert, and Dr. Robert Carson discuss identifying seizures, treatment options, seizure preparedness, non-convulsive status epilepticus (NCSE), and non-epileptic myoclonus (NEM)/tremors. Listen on Spotify, Apple Podcasts and YouTube Podcasts. | Angelman Syndrome Foundation

7.4K views · 75 reactions |  You’re Invited to the Angelman Strong Opening Ceremony!  Get ready for special guests and big announcements as we kick off Angelman Strong. We’re celebrating the strength and spirit of the AS community.   Tune in on Facebook, Instagram, or at angelman.org/strong. Thursday, May 15 | 8 PM EST #angelmansyndromefoundation #AngelmanStrong #WalkforAngelman #angelman | Angelman Syndrome Foundation | Facebook